The Boy in the Moon is a non-fiction Novel written by Ian Brown, Father of a profoundly disabled child named Walker. This book outlines the struggles that Walker goes through, being disabled, and the struggles that Ian himself has to go through, having to see his son constantly in pain.
When Ian Brown first hears about L’Arche he thinks its not a possibility because they are looking for adults and the waiting list is 20 years long but after Jean-Louis Munn had read the story that Ian Brown had published about Walker, Ian and Walker had gotten Invited to Montreal to come visit Munn at L’Arche, which was an offer Brown could not refuse. When Ian and Walker got there, he said it was the place he had been looking for.
“But in the spring of 2008…I saw for the first time the outline of the unthinkable community I was looking for. In that community, I was the stranger.” (p 186-187).
L’Arche to me was a great place where people like Walker could come and fit in and feel really welcome. It was clear to me that many people that are a part of the L’Arche community feel comfortable in what some of them would consider their “home”.
I have learned that it can be very difficult, physically, mentally, and emotionally, with a profoundly disabled child. There are a lot of things physically that can be challenging when dealing with a disabled child like Walker, for example, since Walker was two, Brown would have to get up in the middle of the night and stop Walker from hitting himself and moaning. Not only that, but, He could never figure out what is wrong, and since Walker can’t speak, he will never be able to find out. Because of this event occurring every night, Brown has not gotten a full night sleep in over 6 years. When your child needs that much attention you do not have much time to do other things like socialize and work etc.. Another thing that could be challenging is thinking about what it would have been like if Walker wasn’t disabled, and how much easier life would be.
Some questions that I would ask Ian Brown if I had the chance would be one, if you had the choice, would you go back and not have kids if you had known that they would be as disabled? Two would be what is the hardest part about having a disabled child? My third question would be why did you choose the name Boy in the Moon?